NHS research involves service users and/or carers at all stages of the research process. Service user and carer involvement should at the very least consist of all or some of the following:
- Membership of an advisory or steering group for the study.
- Meaningful involvement in the development of the research question.
- Meaningful involvement in the development of the research proposal.
- Inclusion in the research proposal as co-researchers.
- Involvement in designing questionnaires (or similar), conducting the research, analysing the results and disseminating the findings.
For information on ways service users and carers can get involved in research, please visit our service users and carers page or contact our R&D Involvement Co-ordinator.
INVOLVE has produced some very useful guidance to support professionals in the involvement of users, carers and members of the public in research. Please follow the link to the INVOLVE website to the right of this page.
Each study's budget should allow for adequate coverage of their costs and expenses for being involved in the research.
Dissemination plans should include clear strategies for informing service users and carers of the findings of the research in a manner that is accessible for them. The study should also consider including those users and carers who are actively involved in the project as co-writers of academic papers.
For further information, on service user and carer involvement, please contact the R&D team.