Make a difference and help shape future research in mental health

There are many ways you can get involved to make a valuable contribution.

If you are interested in taking part in a research study, visit our Current Clinical Research Opportunities page for available opportunities based on your diagnosis, situation or experience.

We are committed to making sure we tell everyone involved in AWP services about our research.

Whether you are a service user, relative, carer or member of staff, you can find out about the latest research projects we are working on. We share information about our research and ask you if you would like to be involved. At AWP, we call this approach ‘Everyone Included’.

Everyone Included is our way of making sure that you have the choice of receiving information about research.

If you are interested, we can send you more information about how you can take part in current studies. You do not need permission from your clinical team to be involved and you can rest assured there are strict rules to protect your rights, safety and wellbeing.

You can tell us at any time if you are no longer interested in receiving information in person, by phone, via email or through the post.

Write to us at:

Everyone Included
Research & Development
Fromeside
Blackberry Hill Hospital
Bristol
BS16 2EW

Phone: 0117 378 4535 (Monday to Friday, 9 a.m to 5 p.m only)

Email: awp.researchforall@nhs.net

How we use your personal information to contact you as part of Everyone Included is different to how we use your personal data for research.

Everyone Included comes under the rules for GDPR (General Data Protection Regulation) and we do not use your personal details for any research until you sign up to a study and give us permission to access your medical or care records. 

We recognise the importance of communicating effectively about our research and creating opportunities for those with lived experience to be involved in research alongside healthcare professionals, academics and researchers. These approaches are collectively called Patient & Public Involvement and Engagement (PPIE):

Patient: A person with lived experience of receiving support from services for a diagnosed health condition. The term ‘patient’ is the same as service user.

Public: People with lived experience relevant to understanding healthcare conditions (including carers).

Involvement: The process that allows those with lived experience of healthcare conditions to collaborate alongside healthcare professionals, academics and researchers, with the intention of improving healthcare research and delivery.

Engagement: The communication of knowledge about research.

For more information please email awp.researchinvolvement@nhs.net

‘Join Dementia Research’ has been developed by The National Institute for Health Research (NIHR), in partnership with Alzheimer Scotland, Alzheimer's Research UK and Alzheimer's Society. This service allows people to register their interest in taking part in dementia research and be matched to suitable studies locally and nationally. The service delivers new opportunities for people to play their part in beating dementia. Find out more on the Join Dementia Research website here 

If you are unsure about taking part in a study, there are other ways to get involved in the important work we support. This includes involvement in the various stages of a research study, such as research design, delivery, priorities, data analysis and sharing results.

To find out more about the opportunities to be involved, please see the current clinical research opportunities page.

 

 

 

The ARC is a network for staff, service users and carers, designed to:

  • keep you updated with the latest research findings.
  • allow you to hear about new and upcoming research studies.
  • provide opportunities for getting involved in research.
  • let you be the first to hear about R&D events and research-related training.

If you are interested in joining the ARC mailing list, please email us at awp.research@nhs.net

You can also get involved without playing a direct role in a study by becoming a member of the AWP R&D Committee, which meets four times a year in Bristol or online. Your involvement will make a real contribution towards mental health and dementia research, which can help service users, their carers and the public.

The purpose of the R&D Committee is to:

  • keep service users and their carers at the heart of what we do.
  • to consider how our decisions might affect service users and carers.
  • to ensure we achieve everything set out in the R&D strategy.
  • to monitor the progress, development, governance and performance of research across AWP.
  • to make sure we spend our money wisely.
  • to share information about research activities, events and publications.

We especially welcome input from staff, academics and other professionals. If you are interested in becoming a member of the committee, you can email our R&D Involvement Coordinator: awp.researchinvolvement@nhs.net

We are currently updating our own guidelines for people doing their own research which will be published here when available.

There are also other publicly available guidelines and help from the following resources:

NHS Health Research Authority ‘Is my study research?’ tool: an online tool designed to help you decide whether or not your study is research, as defined by the UK Policy Framework for Health and Social Care Research, and based on information provided by the Research Ethics Service.

NIHR Researchers page: features advice and support on running your own study.

Research Design Service South West (RDS SW): advice on how to turn an idea for research or a study into a funding application, with help from local RDS contacts.

Study Support Service: researchers and the life sciences industry plan, set up and deliver research in the NHS and the wider health and social care environment, across England.

Research Capability Funding: explains how the NIHR can fund NHS trusts to undertake their own research and studies.

Akrivia Health enables organisations to securely work with the world’s largest and most in-depth dataset of structured psychiatric data. For more information, visit Akrivia Health here.

Contact us

If you have questions regarding Akrivia Health, please contact our Akrivia Health Administrator: lara.skinner@nhs.net