What is Everyone Included?
Everyone Included is an approach we use to inform service users about ethically approved research studies being delivered within AWP. Everyone Included was relaunched in early 2022 after a pause during the COVID-19 pandemic. The approach helps to promote diversity and inclusion in research, which helps with our ambitions to create a culture of 'Research For All'.
Everyone Included is an opt-out postal system. This means that we consider that service users want to hear about relevant research opportunities by post, unless they inform us otherwise. This is important because service users have told us they want to make this decision themselves and be asked directly about research.
How does Everyone Included work?
Service users are contacted by post, based on whether they fit the criteria outlined by a research study. These people are selected based on a variety of factors depending on what the study is about. Service users are sent a letter, which contains brief information about a research study and how to express an interest in taking part.
Service users can choose whether they would like to know more about the research study by responding to the letter. Service users can also ignore the letter, if there is no desire to take part in the research study. If service users choose not to take part, their care and treatment will not be affected.
Everyone Included was developed between 2012 and 2014. It was designed and developed with significant input from service users to ensure the design and implementation of the approach was suitable, relevant and appropriate.
Everyone Included was reviewed in 2018 to ensure that the approach meets the standards of General Data Protection Regulation (GDPR) 2018.
Before Everyone Included was relaunched in 2022, we reviewed the approach alongside service users. It was important for us to check that Everyone Included was still fit for purpose after eight years of use.
We asked service users about the approach and we received valuable feedback. This feedback helped us to simplify Everyone Included and make it more effective for the future.
Here are a few things that were changed, based on the feedback given by service users:
- The letters sent to service users were made clearer and shorter.
- The maximum time that service users can be approached about a research study was changed from six months post-discharge from AWP services, to two years (in some cases). It was agreed that this change would be useful, due to the varying nature of some mental health conditions. A person discharged from the service, could still make a valuable contribution to a research study.
- Service users will be contacted with details of a research opportunity if one is available. Previously, service users were provided with an introductory letter to the Everyone Included approach and then four weeks later, were contacted again with more detail about a research opportunity. This was considered confusing and unnecessary by service users. It was agreed that service users will only receive a single letter, combining information about Everyone Included and a relevant study opportunity.
- The process for service users to opt-out of Everyone Included was made clearer.
The Everyone Included will be continually reviewed, with consultation from service users, to make sure it is effective, inclusive and satisfies the needs of service users.
Opting out of Everyone Included
If service users no longer want to hear about research opportunities within the trust, this is called ‘opting out’. Service users can opt out in several ways which include contacting the R&D team by phone or email. If an Everyone Included letter has been received, service users can opt out by completing the reply slip enclosed within the Everyone Included leaflet, and returning this slip to the R&D team, using the freepost envelope provided.
Service users can always opt back into hearing about research opportunities, if they have previously opted out. This can be done by getting in touch with the R&D Team using the contact details on this page.
Studies using Everyone Included:
The GLAD Study is a project set up to explore risk factors in individuals who have experienced depression and/or anxiety, including those with a diagnosis of bipolar disorder, OCD, or related disorders, at any time in their lives.
It aims to better understand depression and anxiety to find and develop more effective treatments. The GLAD Study is also part of the NIHR BioResource, which is a library of information about people’s health aiming to support research in both physical and mental health.
To take part in this study you must:
- Have experienced symptoms of anxiety and/or depression during your life
- Be aged 16 and above
- Live in the UK
The GLAD Study enrolment process consists of four steps:
- Register on the website www.gladstudy.org.uk and read the Information Sheet
- Provide consent (please put AWP as where you heard about the study)
- Complete a questionnaire
- Provide a saliva sample
AWP Research and Development contacts:
Ali Young (alexandra
This study closes on the 30th November 2024
ADEPT-2 is a Randomised Control Trial (RCT) for autistic adults, comparing Guided Self-Help with NHS support for depression.
Depression is a common mental health issue, related to lower quality of life. Research indicates that autistic people are more likely to experience depression than non-autistic people.
Effective treatment for depression includes a talking therapy called low intensity Cognitive Behavioural Therapy (CBT). This form of low intensity therapy is based on supporting the person receiving therapy to work through evidence-based information. This is called Guided Self-Help which has been shown to be useful in non-autistic adults, but it is not known whether it would also be useful for autistic adults.
The main goal of the ADEPT-2 study is to find out whether Guided Self-Help is helpful in reducing depression experienced by autistic adults.
The ADEPT-2 study also aims to determine whether Guided Self-Help would have a good cost-benefit for the NHS. In addition, the ADEPT-2 study aims to find out whether Guided Self-Help received by an autistic adult has impact on their family carers or supporters.
To take part in this study, people must:
- Be aged 18 and over
- Have received a diagnosis of autism spectrum disorder from a healthcare professional(s)
- Experience low mood or depression
- Be able to complete forms with questions either online or on paper
- Be able to give informed consent to take part
Further information:
If you decide to take part in the study, you will be randomly selected to receive either Guided Self-Help or NHS support for depression.
Guided Self-Help involves using a booklet, as well as attending 9 individual meetings with a coach to support use of the booklet. These meetings will be online. If you prefer to meet in person, the study team would be happy to discuss whether that would be possible.
NHS support for depression might include talking therapy, medication, self-coping strategies, and access to support groups.
The study will last for 52 weeks. Taking part will involve completing questionnaires at the start of the study, as well as 16 weeks, 32 weeks and 52 weeks later. You will be able to claim a £10 gift voucher for completing every set of questionnaires in the study. There will also be the option to be interviewed about your experience of the study at the end of the study.
Further information about the ADEPT-2 study can be found here.
ADEPT-2 study team contact:
If you wish to discuss the ADEPT-2 study or reasonable adjustments for taking part in the study, you can contact the ADEPT-2 study team directly by telephone (07855 973171) or email (adept-takepart
AWP Research and Development contact:
This study will close on the 1st January 2024
